I-Chronic myeloid leukemia, ekwabizwa ngokuba yi-chronic myelogenous leukemia, ngumhlaza ohamba kancinci osuka kumongo wethambo, ochaphazela abantu abadala. Nge-CML equka malunga ne-15% yoxilongo olutsha lwe-leukemia e-US, i-Belong.Life ifumene izicelo ezininzi ezivela kwizigulane kunye nabakhathaleli ukuba benze uluntu oluthile kwesi sifo. Uluntu olutsha luya kuba nefolda ekhethiweyo enomxholo ohlaziyiweyo wezemfundo olungiselelwe izigulane ze-CML kunye nabakhathaleli.
"Siyaziqhenya ngokusungula olu luntu lubalulekileyo," kusho uDkt Daniel Vorobiof, uMlawuli oyiNtloko wezoNyango we-Belong.Life. "Injongo yethu kukubonelela ngonxibelelwano olukhulu kunye nemfundo kwizigulana ze-CML kunye nabakhathaleli eUnited States. Isixhobo sethu se-CML esenziwe ngokwezifiso, ngokudityaniswa neqonga lethu eliqinisekisiweyo lomntu siqu eline-AI eyomeleleyo kunye nesakhono sophando lwehlabathi lokwenyani, siya kuphucula uthethathethwano kunye nohambo lokwenyani lonyango kubasebenzisi bethu. "
Iiplatifti ze-Belong ziquka amaqela enkxaso, ukufikelela kwiingcali zonyango kunye nezixhobo ezongezelelweyo zokuhamba, ezifana ne-binder yonyango yokugcina kunye nokulungelelanisa iirekhodi zonyango kwindawo enye, kunye nenkonzo yokulinganisa uvavanyo lwekliniki lwamahhala. Ukubetha Umhlaza ngokudibeneyo uluntu luya kuba namaqela amabini aphambili - i-CML Jikelele kunye ne-CML Symptoms kunye ne-Side Effects.
Ukuqhubela phambili ukuphucula umgangatho wobomi bezigulane, i-Belong idibanise i-CML Tracker, isixhobo esitsha esivumela izigulane ukuba zilandele iimpawu zabo ngexesha lesifo kunye nonyango. Bonke abasebenzisi be-CML baya kuba nokufikelela kumaqela aqhelekileyo e-Belong-Beating Cancer Together, anje ngeCancer & Coronavirus, Fumana iimvavanyo zoNyango, ezesondo kunye noMhlaza, i-Inshurensi nezinye ezininzi.
Iqela loluntu le-Belong's CML liya kuququzelelwa nguMel Mann, oneminyaka engama-26 owasinda kwi-CML, ummeli wesigulana kunye nomcebisi. UMel wafunyaniswa ukuba une-CML ngo-1994. Ngokuchasene nazo zonke izinto ezingathandekiyo, uMel uye walawula ngempumelelo imeko yakhe kwi-chemotherapy ejoliswe kunyango ukususela ngo-1998 kwaye uya kubelana ngamava akhe, iingcebiso kunye neengcebiso kunye nabanye abahamba nge-CML uhambo.
INTO ONOKUYITHATHA KWELI NQAKU:
- Belong’s platforms include support groups, access to medical professionals and additional navigation tools, such as a medical binder to store and organize medical records in one place, as well as a free clinical trial matching service.
- “Our aim is to provide the largest engagement and education network for CML patients and caregivers in the United States.
- The new community will feature a designated folder with updated educational content customized to CML patients and caregivers.
