Ukunciphisa ukulibaziseka ekuFundeni izifo zemiphunga eziyinkimbinkimbi

I-Three Lakes Foundation kunye ne-American College of Chest Physicians (CHEST) kutshanje ibhengeze intsebenziswano yabo kwi-multiphase education initiative ejolise ekunciphiseni ixesha elithathayo ukuxilonga izigulane ezine-Interstitial Lung Diseases (ILD).    

Ukuchaphazela malunga ne-400,000 yabantu base-United States, ii-ILDs liqela lezifo ezibangela ukuvutha kwemiphunga kunye / okanye izibazi ezisisigxina (fibrosis). Iimpawu ziyafana nezinye izifo ezixhaphakileyo zemiphunga, ezihlala zikhokelela ekuxilongeni kakubi okanye ukulibaziseka kokuxilongwa. Olunye uphononongo lubonisa ukuba ukufikelela kuxilongo olufanelekileyo lwezifo zemiphunga ezinqabileyo kunokuthatha iminyaka emininzi.

Kwiimeko ze-ILD ezaziwayo, eyona nto ixhaphakileyo yi-idiopathic Pulmonary Fibrosis (PF). Le meko ibangela ukuba izicubu zemiphunga zibe namanxeba kwaye ziqine, nto leyo enciphisa ubungakanani kunye namandla ayo. Inxeba le-PF alinakuguqulwa okanye lilungiswe, kwaye akukho nyango lwaziwayo. Okwangoku, malunga ne-30,000 ukuya kwi-40,000 yezigulane zifunyaniswa ukuba zine-PF ngonyaka, ngelixa ezinye i-40,000 zilahlekelwa ubomi babo ngenxa yesi sifo ngonyaka.

Ngaphandle kwenkqubela phambili yenzululwazi kunye nolwazi olwandisiweyo olukhoyo, ukuxilongwa ngexesha kunye nokuchanekileyo kwi-PF kuhlala kungumngeni. Ikhosi yesifo iyahluka ukusuka kumntu ukuya kumntu kwaye inokuqhubela phambili ngokukhawuleza kwezinye iimeko, inyusa imfuneko yokuba imeko ifunyanwe kwizigaba zayo zokuqala. Ngelixa izigulana zifunda ukuba zinePF, imeko inokufuna ukuthembela ekusebenziseni ioksijini, ukulaliswa esibhedlele, kwaye kunokukhokelela kumgangatho ophantsi wobomi, kunye nobomi obufutshane kakhulu.

"Omnye wemiba ekhokelela ekuxilongweni kwexesha elide kukuba izigulana zinokubonisa iimpawu ezixhaphakileyo kwezinye iimeko zokuphefumla, njengokuphefumla, ubunzima bokuphefumla, ukukhohlela kunye nokudinwa," litsho ilungu le-CHEST kunye nonjingalwazi onxulumene nePulmonary Medicine kunye neYunivesithi yaseYunivesithi. eUtah, uMary Beth Scholand, MD. Ngaphandle koxilongo oluchanekileyo, abaguli be-ILD, ngakumbi abo banePF, banokufunyaniswa gwenxa ngebronchitis, COPD, COVID-19, okanye isifuba kwaye bahlala behamba kuthotho lweemviwo, iimvavanyo kunye nonyango iinyanga. Ukuvala umsantsa kubalulekile ukuze kuqaliswe unyango ukulawula iimpawu kunye nokuqhubeka kwesi sifo. ”

"Njenge-catalyst yenguqu kuluntu lwePF, sathetha nezigulane, abaqeqeshi bezempilo, oogqirha, kunye namaqela akhuthazayo ukuqhubela phambili ukuqonda amava okuxilongwa kwe-PF," kusho uDana Ball, umlawuli olawulayo we-Three Lakes Foundation. "Siye saya kwi-CHEST xa kwacaca ukuba oogqirha bezonyango ezisisiseko banokusebenzisa izixhobo ezithile zokuchonga izigulane ezinobungozi obuphezulu kunye neemeko ze-pulmonary. Le ntsebenziswano isisiphumo semfuno yethu efanayo yokwandisa ulwazi phakathi kwabasebenzi bezempilo kunye nokuphucula iziphumo zezigulane. "

"I-CHEST iye yakha idumela lehlabathi jikelele lokuqhubela phambili iziphumo zesigulane ngemfundo entsha yeyeza zesifuba, uphando lwezonyango kunye nokunakekelwa kweqela," kusho uRobert A. Musacchio, PhD, i-CEO ye-CHEST. "I-Three Lakes Foundation iyaziwa ngomsebenzi wayo ekuphuculeni ixesha lokuxilongwa kunye nokukhawulezisa ukhetho lonyango lwe-PF. Ngale ntsebenziswano, sijolise ekutshintsheni indlela yokuxilongwa, unyango kunye nokunyamekela izigulana ezine-ILD ezifana ne-PF. "

I-Three Lakes Foundation ibonelela ngenkxaso-mali yokuqala ye-CHEST ukuba iqalise ukuyila ungenelelo lwezemfundo olujongene nezikhewu kulwazi kunye nokusebenza kwaye luya kudlala indima ebonakalayo ekongameleni ukuphuhliswa kweprogram. I-CHEST iya kutsala kunye nababoneleli bezempilo abaphambili kulo lonke ukhathalelo oluphambili, usapho, ukonga kunye neyeza lomphunga ukusebenzisana ekuchongeni iimfuno kunye nezicwangciso zokuphucula ukuxilongwa nokwakha ulwazi lwe-ILD. I-CHEST iya kuvavanya, uphando, kwaye ilinganise impembelelo yeprogram ekusebenzeni kweklinikhi kunye nokunyamekela kwesigulane kwaye iqikelele ukufikelela ngokubanzi kwababoneleli bezempilo abangaphezu kwe-100,000 ngexesha lenkqubo iqhutywe ngokupheleleyo.