Abantu abaphila neLupus banobuncinci belungu elinye eliKhulu elichatshazelwe sisifo

Kuphando lwakutsha nje lwamazwe ngamazwe, i-World Lupus Federation yafumanisa ukuba i-87% yophando lwabaphenduli abaphila ne-lupus bachaze ukuba isifo siye sachaphazela ilungu elinye okanye amaninzi amakhulu okanye iinkqubo zamalungu. Abantu abangaphezu kwama-6,700 abane-lupus bathathe inxaxheba kuvavanyo olusuka kumazwe angaphezu kwe-100.

I-Lupus sisifo esinganyangekiyo se-autoimmune esinokubangela ukudumba kunye nentlungu kuyo nayiphi na indawo yomzimba apho amajoni omzimba, ahlala elwa nosulelo, ahlasele izicubu ezisempilweni endaweni yoko.

Phantse isithathu kwikota yabaphenduli bachaza amalungu amaninzi achaphazelekayo, kunye ne-avareji yamalungu amathathu achaphazelekayo. Ulusu (60%) kunye namathambo (45%) zezona zitho zichazwe ngokuqhelekileyo zichaphazelekayo yi-lupus, ngaphezu kwezinye izitho ezithintekayo eziphezulu kunye neenkqubo zombutho ezibandakanya izintso (36%), i-GI / Digestive system (34%), amehlo (31) %) kunye nenkqubo ye-nervous central (26%).

Ngelishwa, abantu abaphila nelupus baxelelwa ukuba ‘ababonakali begula,’ ngoxa eneneni belwa nesifo esinokuhlasela naliphi na ilungu emizimbeni yabo size sibangele inyambalala yeempawu nezinye iingxaki zempilo,” watsho uStevan W. Gibson, umongameli kunye ne-CEO, iLupus Foundation yaseMelika esebenza njengoNobhala weWorld Lupus Federation. "Umsebenzi obalulekileyo weWorld Lupus Federation kunye namalungu ayo unceda ukwazisa ngemingeni abantu abanelupus abajongana nayo yonke imihla kwaye uzisa ingqalelo kwimfuno yenkxaso engaphezulu kwihlabathi liphela, kubandakanywa neenkokeli zoluntu kunye nezikarhulumente ukunyusa imali yophando olubalulekileyo. , iinkonzo zemfundo kunye nenkxaso ezinceda ukuphucula umgangatho wobomi kuye wonke umntu ochatshazelwe yilupus.”

Phakathi kophando abaphendulayo babika impembelelo yelungu, ngaphezulu kwesiqingatha (53%) balaliswe esibhedlele ngenxa yomonakalo wamalungu owenziwe yilupus kwaye i-42% yaxelelwa ngugqirha ukuba ngenxa yelupus banomonakalo ongenakulungiseka.

Impembelelo ye-lupus emzimbeni ihamba ngaphaya kweempawu zomzimba. Uninzi lwabaphenduli (89%) luchaze ukuba umonakalo onxulumene ne-lupus ukhokelele kumceli mngeni omnye obalulekileyo kumgangatho wobomi babo, onje:

• Ukuthatha inxaxheba kwimisebenzi yentlalo okanye yolonwabo (59%).

• Iingxaki zempilo yengqondo (38%)

• Ukungakwazi ukusebenza / ukungaqeshwa (33%)

• Ukungakhuseleki kwezemali (33%)

• Imingeni yokuhamba okanye yothutho (33%)

"Uninzi lwehlabathi aluqhelananga ne-lupus kwaye aluqondi intlungu esihlala sijongene nayo okanye ukungaqiniseki kweliphi ilungu okanye inxalenye yomzimba wethu i-lupus eya kuhlasela ngokulandelayo," kwabelwana ngoJuan Carlos Cahiz, uChipiona, eSpain, wafumanisa ukuba une-lupus ngo-2017. "Ezi ziphumo zophando zigxininisa ifuthe elibi ilupus enalo kubomi bethu kwaye kutheni kufuneka kwenziwe okungakumbi ukwazisa ngesi sifo, nokuqhubela phambili uphando kunye nokhathalelo."